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I caught this documentary last night on TLC and could not stop watching it. I was blown away by how somone could end up with the condition this guy has and not be able to do a darned thing about it. The next time somebody complains to be about health care in America, I'm going to bring up Dede.
Post by sparklybecca on Feb 21, 2008 16:19:41 GMT -5
i saw the special on him on TLC... i feel so bad for him but he is getting help. they also showed these other 'freaks' that he does a side show with and they were NUTS!
Post by rarelyheard on Feb 21, 2008 16:49:05 GMT -5
Yeah, a group of my friends and I were watching this one night before we went to the bar. We ended up staying to watch the whole thing before going out that night because we were so hooked in.
i saw the special on him on TLC... i feel so bad for him but he is getting help. they also showed these other 'freaks' that he does a side show with and they were NUTS!
actually - according to the follow up story - he is not getting help now thanks to politics and government
Here is the story:
A doctor hears of a man who is afflicted by bizarre, grotesque tree root-like growths on his hands and feet, and tracks him down to the jungle. Through careful analysis and painstaking detective work, the doctor discovers the reason for the man’s affliction and begins to develop a cure.
The tale of Dede, a 35-year-old Indonesian fisherman, which was first reported last month, is heart-warming. The “roots” in question began to grow from his limbs after he cut his leg as a teenager.
Gradually, these “cutaneous horns” became so large that he could not work, walk properly or use his hands. Consequently, he could no longer care for his children, and his fellow villagers subjected him to abuse and ridicule.
Local doctors were baffled as to the growths’ cause – until Dr Anthony Gaspari, a dermatology expert at the University of Maryland in the US, heard about Dede’s plight and flew to Indonesia to investigate.
advertisement Blood tests showed that the growths are caused by rampant human papilloma virus (a wart virus), but it is still a mystery as to why it is so out of control in Dede’s body. Dr Gaspari has suggested treatment with vitamin A and begun further research to understand the pathological process at play.
The history of medicine is littered with examples of inquisitive individuals such as Dr Gaspari, who were spurred on by an all-consuming desire to help humanity and a dogged determination to understand and master diseases that blighted people’s lives.
In the modern world, medical advances are dominated by profit margins, projected sales figures and marketability. It’s the absence of these factors that makes the story of Dede and Dr Gaspari all the more endearing.
But what began as an inspirational story of one man’s desire to help another – of the application of the doctor’s expert knowledge and scientific reason to alleviate another human’s suffering – has turned into a sad parable of modern life.
Now the story is about how politics impacts people’s lives; how bureaucratic concern obliterates the individual. A row has erupted because Dr Gaspari has taken Dede’s blood samples back to his laboratory in the United States in an attempt to research a cure.
But Indonesia’s health minister, Siti Fadilah Supari, argues that developing nations risk exploitation unless they maintain control over their virus strains. Indeed, previously she has refused to share bird flu samples with other countries in case they use them to produce expensive vaccines.
Dr Gaspari, desperate to help Dede, has offered to put it in writing that the samples were not for commercial use, explaining: “We did it for humanitarian reasons, to help the patient.”
With the project in jeopardy, Dede may never be cured, the mysteries of his illness remaining unsolved. It’s hard to know who to blame; a paranoid, defensive and self-interested Indonesian government, or the US, whose aggressive pursuit of wealth and power generates such fear in other nations?
The virus does not belong to the Indonesian government, and it is not Mrs Supari who has to endure the lesions that it has caused. But perhaps the pharmaceutical industry in the US is mercenary and countries like Indonesia have a valid reason to be wary.
It’s indicative of the market-savvy, cynical world in which we live that the Indonesian government refuses to believe that one man would go to so much trouble just to alleviate another’s suffering. It’s a parable of how power and greed – both real and imagined – can halt progress, and how nebulous political concerns overshadow those of the individual.
After all, it was just one man trying to help another.
Post by AngrySunday on Feb 21, 2008 20:19:13 GMT -5
I caught the special on TLC too except I think poor ol' Dede is full of shit. If this is supposed to be on the level, can someone please explain how he managed to get his monsterous hands and feet into his clothes????????? The cuffs appear to be standard size and IF this is for real, why in hell wouldn't he file/sand the growths down to functional size? I call bullshit on this one.
^^^but surely the Discovery Channel and TLC would have checked all that out???? maybe??? I see where you are coming from - I went back and looked at the pics
Why would anyone fake that? The dude is poor as hell. His wife left him because of his condition. He has to work in a freak show just to make a little money. I don't know how anyone could possibly benefit from that.
Looks like the doctor that examined him was pretty convinced that it was a real health problem and he even diagnosed it. Are you saying you think it's a hoax?
seeing him smile in this picture touched me somehow...i guess it was the juxtaposition of this extremely unfortunate condition and yet such a genuine smile
Post by SouthGA_Festival Machine on Feb 23, 2008 3:04:04 GMT -5
The human papilloma virus (HPV) is the virus that causes genital warts and cervical cancer, the same HPV that a vaccine was recently developed for, so it shouldn't take a whole lot of research to learn how to treat it.